We spent the afternoon with Sophie, who was making her nurse (Loretta) run for her money today. She has spells where she stops breathing and her chest wall clamps down, so not even the ventilator can get air into her lungs. She did it quite a few times this morning, and Loretta let us know that she alerted the docs to this behaviour. When we spoke to one of the doctors, he let us know that Sophie didn't have an infection, and it didn't seem like she had something wrong with her brain that would cause her lungs to stop working. He put her on a medication to dry out her lungs from any residual yuck that was in there and a medication that would help her to keep her feeds down so she doesn't breathe in any spit up. We requested an appointment to meet with her doctor before the end of the week.
Other than that, she was looking great! Last night she weighed in at 700gm, which they thought was quite a big jump from her previous weight, and she was moved into a different isolette - they call it her big girl bed. (Sorry no pics --I went to take a picture today and realized I left my camera at home.) She was making the cutest faces and at the end of our visit she opened her eyes wide to look at Kie and me...they tell us that she can only see shadows but when those eyes lock with mine I can feel it. She sees us. I know it.
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Lorraine....you are right...she is connecting with you...and though she may only see shadows...Sophie certainly can feel your presence and draw from your strength...Both of you are doing more for her than you know! Keep up it up!! Kyle, Ravi and Bologna send their love!
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